After I had my baby, first months were so perfect. I felt tired, but that’s how you feel when you are raising a little human right?Symptoms from cholestasis was long gone. But I started to notice a yellow tinge in my eyes again,ignored that(someone is not learning from old mistakes🤦🏼♀️).I thought I am overthinking.But itchy skin and those TMI symptoms I never talk about, appeared again.So I couldn’t ignore this anymore. Blood tests showed I am having a flare🤯This time I wasn’t scared, I was so angry. Can you guess why? Because I was put on enormous dose of prednisolone! I knew step-by-step what’s going to happen. I was so angry that I wasn’t thinking about my poor liver, I was thinking how I’m going to look in the pictures with my baby,because i will have the moon face.Ha ha I know it’s silly, but that’s me🤪I understand that I have to be grateful for this prednisolone, because it’s saving my life and I really am. But still is hard to be a whale(that’s how I was calling myself) when all other mums looks gorgeous,walking proudly with their shiny prams.I just wanted to hide😞I was avoiding places where i could bump in to people i know.In the shop i was embarrassed to buy a simple Snickers bar!I thought shoop keepers are judging me for being fat and eating more sweets🤦🏼♀️In reality nobody cares how fat you are or how many snickers you ate that day.But it was doing my heading.I was suffering emotionally really bad.Also prednisolone on high doses really can affect your mood.Ok enough crying,it was one very good side effect aswell 😂Sleepless nights. You get it? Ha ha,because then you are having a baby you are not sleeping much anyway!So at least it wasn’t hard🤪 At night time while feeding my baby I was just reading a book. How cool is that😂And my baby was very sloooooow feeder 🤪He was taking his time with mummy,bless him.
Because i was having a flare,another biopsy was booked which confirmed further damage. But what you can do, just expect that Prednisolone will stop that . And of course it did.
I have only few pictures together with my son, but that’s okay as honestly i don’t want to remember how I looked. I think this moon face is a reminder for me that I have AIH and PSC for life. I stayed on Pred again for nearly a year,my clothes was getting tighter and tighter,apetite ,bigger and bigger.I could eat half of a small chicken with potato and salads😂And actually i could eat even more,but i had to leave something for others who was sitting with me at the table 🤪😂Honestly this apetite from steroids is something unimaginable🤦🏼♀️You can be hungry in pregnancy,but this hunger was different 🤪Also I want to mention how painful dose reducing was .Every time we go lower on mg ,my bones were hurting so bad. Not the joints but the actual bones. It would last about a week and then start again with the dose dropping further. I really hoped that I don’t have to experience that again.
I was stable on 2.5mg or 5mg(depended on my bloods)for about 9 years with no major problems,no symptoms.Well it was few occasions when i think i had cholangitis attack and again i managed to sit at home and suffer,but wasn’t going to A&E!!!Once i was lying down for 24 hours with horrible chills,under 2 warm duvets with my clothes on,and still was cold!!!But no fever.So i though it’s probably food poisoning,because with cholangitis fever is high!!!Wrong again!!!It can happen without fever definitely.Even if i was thinking it’s food poisoning,why i wasn’t going to A&E with these symptoms🤦🏼♀️Please never do that!I don’t know how i managed but in 24hours i started to feel better.I am probably the luckiest person in the world 😂You will notice i like to use the word lucky for my self quite often.You might think,how come you are lucky,when you have Autoimmune diseases?Well but i am still here and managing not so bad🤪There are people who struggle much more than me.I have to be grateful i am walking on both of my legs,i have both of my arms,i am not starving,have a nice place where to live,i have my lovely family❤️ i will survive 🤪sometimes i am even forgetting about my autoimmune mess!!
My follow up appointments was twice a year.My hospital changed.Previous doctor referred me to King’s College before he left the other hospital i was in.And i canot be happier with the care i am getting here!I had another two pregnancies wich went very well,except that they were premature at 32 and 33 weeks.But it was nothing to do with AIH or PSC,it was another little thing what womens sometimes have,nothing to serious.My little boys are now 9 and nearly 7(and of course my teenager 13 years old,i was talking in previous post about him).What a wonderful team of 3 boys i have.Should i count my husband as a 4th😜😂Joking,he is great.He was with me from the beginning and he is still now.Hopefully he has some nerves left to stay with me for the rest of our lifes😂😂
All is possible even with cirrhosis and autoimmune diseases.Life after diagnosis exists ,really!And i am proof of that💪🏻I always will remember the "second opinion " who told me i won’t have kids!And pregnancy cholestasis wasn’t the case with these two.Maybe because they were premature or maybe i was just lucky(again🤪).
P.S.in this picture is my two premature babies🤪They are strong and healthy now❤️They were born two years apart but we call them twins,because of the connection they have.
Have a wonderful friday lovely people❤️
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