COMPLICATIONS KICKS IN
Hi lovely people. Today I will jump from 2007 straight to 2018. See I told you life after diagnosis exists! I don’t have what to tell you about my illness in this gap.Unless you want to hear some usual stuff like nappy changing,cooking and photography 🤪But i am sure you don’t,so let’s get back to business 🙂
One beautiful spring morning i was preparing to hospital for my 3 yearly endoscopy ,to check on varices(complication wich can happen when you have cirrhosis).Oh i hate endoscopies so much.Funny scenario was playing in my head how the phone would ring,i would answer and hear "sorry we have to reschedule your endoscopy,next available date is in one hundred years from now" ha ha🤪Of course it didn’t happen and soon i was in hospital,preparing for dreadful procedure😫First,banana flavour throat spray.Honestly i don’t have an idea why they call it banana flavour😂Did they ever tasted it?If bananas would taste like that spray,i am sure it wouldn’t be very popular 😂So gross 🤢However it does numb the throat a bit,wich is helpful.Next is the mouth guard!!Oh i am not a fan of this either,it makes me gag even before the procedure starts.What i learned after many many endoscopies i had,is to ask for paediatric mouth guard,the one they use for kids!It’s much smaller and more comfortable.Try it if you have endoscopy coming.Ok so next is sedation,i like this part alot🤪How it’s slowly kicking in,your stress and worries are fading away...And they kinda ruining it with putting the scope down the throat 😂Well ok i came for that,not for a nap🤪Anyway when nurses woke me up,bad news hit me like a bus😫Varices were found,already stage 3 with red signs,i think that means they are more likely to bleed.And bleeding varices is not fun for sure,also it can be life threatening🤯I was put on beta blockers.These findings upset me alot. I thought that’s it, it must be the end😱I like to dramatise a bit,but really it was very scary!I didn’t know at that time that is possible to control them with beta blockers quite well.
Soft diet was explained and another appointment booked in 4 weeks!"Whattt!!!!Why i have to come back so quick?".So basically they can reappear again and again,and i have to keep coming back until they are gone completely!Huh😫
At home i felt very hungry (as before procedure you canot drink and eat for 8 hours),i followed the instructions for soft diet and chose to eat some yogurt.Oh dear!I couldn’t swallow even the plain yogurt,it was so painful!I tried couple more spoons slowly,but was still the same,so i gave up on food that day.For my big surprise nearly all week was the same,slowly getting better at day 5.That was a week of detox😂I lost few kg and before summer it’s always nice to be slimmer 🤪I really wasn’t looking forward to my next endoscopy.I felt frustrated and did a mistake as i started to google!!!And of course i was cruel to myself and in a search bar i typed "life expectancy with varices"🤦🏼♀️I don’t remember the answer now,i just know i was freaking out and was googling deeper and deeper about a things i don’t understand 🤯I spent many nights like that,reading nonsense and crying.Internet can be daunting,there is so much information and not all of it is true.And i was so desperate to read something positive from real people.That was the time i found wonderful group on facebook for people with AIH(i mentioned the group in my first post,it’s pined at the top of the page) and later i found another one for PSC https://www.facebook.com/groups/pscsupportuk/?ref=share
Those groups helped me so much,first time in my illnes history i was chatting to other people with AIH and PSC!!!I was so happy,it felt like i finally found my home🤪😂
The same month anemia was discovered on blood tests and i was put on iron tablets and folic acid.Also my liver function tests started to raise.After so many years of being stable,all these recent findings shaken my life a lot.I was just hoping that soon all will be back to normal and i can carry on with my life.
There is always a rainbow after every storm...right?
In the pic is my kiddies expressing themselves 🤪
Comments